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Benefits change regularly so it is worth contacting your local Benefits Office to find out the latest benefits available. This is a guide to the standard benefits that are available in 2003/4

You can claim DLA (Disability Living Allowance) care component, for your child, from age 3 months although many people report that it is easier to apply when their child is aged 6 months to a year. It is a monetary benefit payable to people who require extra help and care. DLA has two parts a CARE component and MOBILITY component. Mobility can be claimed from when your child is 3 years old.

It is really important that you seek advice when applying for this benefit – the rules for getting DLA are complicated and many people are turned down. Do not be too disheartened if you are turned down on first application, it is very common and most people get the benefit on appeal. The National DSA produce guidance notes to help you when filling out the forms.

** Please contact one of the Disability Support
Agencies when applying for DLA – your Health
Visitor or Social Worker may not be aware of how difficult this application can be.**

There are 3 rates of DLA : Higher, Middle and Lower. We believe all children with Downs Syndrome should receive at least Middle rate. This is not a means-tested benefit and everyone should be eligible to apply for it.

Once your child receives the Middle or Higher rate of DLA you can claim Invalid Care Allowance for yourself as main carer if you fulfil the benefit criteria.